Tomorrow, February 29th, marks the 5th annual observation of Rare Disease Day. This day aims to raise awareness for diseases around the world that tend to get less visibility and attention based on their extreme rarity. The goal is to shed light on these diseases and bring together the volunteers, donators and researchers who have an impact on finding cures every day.
As with the last 4 years, Rare Disease Day events are occurring around the world. This year, events will take place in 40 countries spanning North America, Europe, Asia, and Oceania. The event is organized by EURORDIS, which is known as “the voice of rare disease patients in Europe.” While these diseases may be rare individually, it is estimated that 30 million people suffer from rare diseases in Europe alone, making the need great for better awareness and funding for research around these diseases. By bringing together new people from aroudn the world, these events and their goal of increasing awareness are very similar to the idea of Crowdsourcing.
As always, Article One will be sending out profit sharing rewards in the next few weeks. In light of Rare Disease Day, we invite our Researchers to donate a portion of their reward to Milestones for Children, for its research towards a cure for Glut1 DS. Milestones for Children was founded in 2008 and supports a variety of research initiatives relating to Glut1 DS, a rare disease that prevents the brain from getting the energy it needs to function properly. It is estimated that only about 300 people in the world are currently diagnosed with the disease.
For more information on the group and the disease, and to donate, click here. As their website states, “the single most important need at this time in the life of Glut1 DS research is funding.”
Please consider Milestones and other charities as ways to help others and share the success you have through Article One Partners. We are so grateful to have such talented and enthusiastic researchers, and we hope that you will take this opportunity to join the world in celebrating Rare Disease Day.